The syndrome cannot be cured, though children and adults with CdCS will be able to get a variety of different therapies as they grow up. The therapies section gives some information on the most common ones.
It may make GP visits easier if you make your situation clear to your surgery, and see a regular GP who could get to know your child and their needs. Providing them with this information (which you can download) may help.
You should also let you GP know if you are a carer for a person with CdCS, as this will affect your own needs.