Supporting people with Cri du Chat Syndrome and their families

Family Weekend

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Friday 27 to Sunday 29 June 2014

Venue: Holiday Inn, Chessington World of Adventures Resort

Programme

Friday 27th June

check in and conference registration from 2pm

6:30 - all those who have booked for dinner should meet at the hotel reception to be escorted to the venue where we are having dinner (10 minute walk)

7:00 – Welcome and AGM

7:30 – 9:30 Buffet (Residents only or by prior arrangement) Explorer Outpost Marquee

If you are not staying at the hotel, but would like to attend the buffet please let us know.

Saturday 28th June

Chessington Safari Hotel Enter through main reception and follow signs to conference area

9:00 – 10:00 Children’s Trip Registration *Breakout Lounge, Conference Centre *

Refreshments available

10:00 – 10:15 Welcome by Darren Ayres, Chairman *Breakout Lounge, Conference Centre *

10:20 – 11:00 Workshops

  • Clinical Advisory Group Forum (Facilitated by Damian Haywood). An open forum to discuss anything to do with Cri du Chat, but please do submit your questions in advance to office@criduchat.org.uk.

  • The Way Forward (Facilitated by Darren Ayres & Lucy Santos). The support group is always interested in whether we are providing support for our families and spending the money raised in the best possible way. We have recently circulated a questionnaire designed to focus on these issues and in this session families will have the opportunity to feedback.

11:10 - 12:00 Lance Tilley

12:10 – 1:00 Workshops

  • A marker in the sand: Where is PBS and where is it going? (Facilitated by Andy Fenwick). Covering the significant positive behavioural support over the last year and what is going to happen in the next 12 months.

  • Introduction to Mindfulness (Facilitated by Carl Rodrigues). Mindfulness can be a useful tool to help carers manage the psychological strains that come with caring; in this session Carl will give you a taste of how to go about using mindfulness and meditation techniques.

1:00 – 2:00 Buffet Lunch, Zafari Restaurant

2:15 – 3:00 Workshops

  • Clinical Advisory Group Forum (Facilitated by Damian Haywood). An open forum to discuss anything to do with Cri du Chat, but please do submit your questions in advance to office@criduchat.org.uk.

  • Transition (Facilitated by Lance Tilley).

3:00 Refreshments available. Children return from trip.

Sunday 29th June

11:00 - Checkout

There are no formal sessions on the Sunday but we usually meet for breakfast in the hotel.

Families are welcome to use the hotel facilities.

Parking

FREE Parking is available on hotel site. In other areas charges will apply.